33 responses so far ↓

• Marlene // Aug 10, 2008 at 9:05 pm

  Lots of great information here!

• Jeffrey // Dec 19, 2008 at 2:11 pm

  Yes i appreciate all the work done here to share information for those of us who suffer from chronic pain conditions on a daily basis on thing in general though I tend to see is that more of those suffering in pain and are active are female and not male but I am personally and male and I know of other males who live in constant chronic pain as well and I ask all those male who suffer not to be afraid to speak out as well as we tend not to want to but honestly I have learned that we all share them pain and it doesn’t make you less of a man to admit your living in constant pain and have problems associated with it and enable yourself to release some of your thoughts on the things bother you as it will help to get it out of your head in some way as I know this all to well personally. Thanks again to this group and all the others who work to keep us updated and in tune with what is going on within the world og chronic pain and somewhere to be able to release our thoughts and ideas as well. I think this might be a good topic as well concerning chronic pain on how men tend to not express their pain as well and that we are out here suffering as well with chronic pain and the numbers show more women suffer from chronic pain than men but is that because as men we have been taught we are suppose to be tough and not cry and don’t talk about our pain or go to the Dr’s as much as we should when bothered with the pain? I personally suffer from RSD that started after back surgery and after nine years it has spread and I have gained several other health problems that can’t be said for sure are related to the RSD but I feel are a result of the stress of dealing with the pain over those years and through my experiences I know I have seen far more men in pain than the support groups and online blogs show there to be honestly. I co-own a RSD support group and there is only me and one other man in the group now and that is out of about 70 members. Again however thinks for working hard to give us all the information you do concerning chronic pain and giving us the oppurtunities to speak out with our thoughts and ideas concerning living in chronic pain as well as it is a great site.
  Thanks, Jeff

• John // Jan 11, 2009 at 11:22 pm

  Thanks for the website. I have a number of patients who might benefit from your work.

  Thanks,

  Dr. Ratcliffe

• sharon // Jan 13, 2009 at 7:48 pm

  i was diagnoced with rsd in 1999 after an injury at work. for two years physical therepy and doctors. after settlement even though court told them to treat me forever not one call or doctor what would help with pain besides perscription medicine. want to live a long life.

  sharon

• sharon c // Jan 13, 2009 at 7:52 pm

  i dont take perscription medicine unless i feel as if i would fall to peices probably four months out of the year i get real severe pain and need help but the warm weather i can do better
  sharon

• martin // Jan 21, 2009 at 4:09 pm

  its a nice site!

• Nickie // Jan 23, 2009 at 3:01 pm

  A Journey Toward Accessibility Begins with a Few Honest Stories
  http://puppybraille.livejournal.com/610545.html
  I share some thoughts on the accessibility of medications to people with poor vision and link to a report on the topic. As more people age, there will be more people with vision problems and more people with pain. I feel it’s important to draw attention to the problems which can occur if the person cannot access their medication information.

  Blog Name: Nickie’s Nook
  Blog URL: http://puppybraille.livejournal.com

• Diana // Jan 25, 2009 at 7:52 pm

  Embracing Your Body’s Wisdom
  http://livebeyondstressandillness.blogspot.com/2009/01/mind-body-balance.html

  I share a guided meditation that integrates a focus of breath work and relaxation techniques to ease discomfort and pain in the body.

  Blog name: Live Beyond Stress and Illness
  Blog URL: http://www.livebeyondstressandillness.blogspot.com

• Andy // Feb 1, 2009 at 8:24 pm

  May I suggest “Hope” as a topic for the upcoming Pain-Blog Carnival.

  * Post title - Keeping Hope
  * Post URL - http://againstthegraine.blogspot.com/2009/01/i-returned-from-sixteen-hour-round-trip.html
  * Blog URL - http://againstthegraine.blogspot.com/
  * Description -
  I share my personal feelings, experiences, and other information in dealing with Migraine Headaches. There is relevant information for dealing with any kind of chronic pain. I also provide information gleaned from the web and links to professional sources and other bloggers.

• Kelly // Feb 10, 2009 at 6:58 pm

  I have had chronic daily headaches since 1986, becoming legally disabled by them in 2006. I’m requesting the topic be “How to have a sex life when you have chronic pain”. At this juncture, my husband qualifies for sainthood, being not only kind, generous & understanding but also celibate! How can I be a sexual being when all I want is a nice coma?

• Louise O // Feb 11, 2009 at 1:02 pm

  Hello!
  Your website is just the most marvelous source of information I have found on chronic pain. I just had to mention this beforehand.
  I would like to read the articles mentionned in the Feb 11th issue:
  1. Graded motor imagery for pathologic pain. Neurology 2006, Vol 67, 2129-2134.
  2. Graded motor imagery is effective for longstanding CRPS. Pain 2004, Vol 108, 192-198.

  Thank you so much for all the education and information you provide us with. Please keep it up!

  Louise

• How to Cope with Pain // Feb 11, 2009 at 2:49 pm

  Louise, thanks!

• Ronnee // Feb 25, 2009 at 2:58 pm

  Can a person with DID (multiple personality disorder) be treated for physical pain due to trigeminal neuropathy with hypnosis? Trigeminal neuropathy was from a minor dental procedure that led to osteomyelitis of the maxialla. This happended 6 years ago and only Botox allows some relief. I was led to believe the hypnosis cannot be performed on a person with DID.

• Tens Unit // Feb 26, 2009 at 3:48 am

  Really nice site with good information re: pain.

• Daniel // Feb 28, 2009 at 5:58 am

  Great site! May I suggest having medication topics related to the management of chronic pain.

  Recently got some great information and advice from pharmacists at the Institute for Medication Management http://www.medicationreview.net

  Am sure they would contribute insightful guest articles. Hope your readers can benefit.

• Mary H // Mar 4, 2009 at 1:02 pm

  http://the-new-science-of-pain-relief.com/

  It has a free online class - I was reading it last night - what do you think of the science part of it?

• How to Cope with Pain // Mar 4, 2009 at 2:45 pm

  After a quick look over - the science looks to be a good resource for patients. They will be offering products (”coming soon”), so I’d like to see those before I recommend the site.

• asma // Mar 9, 2009 at 8:48 am

  Thank you for all the information that you have shared. I started acupuncture for my chronic pain and it seems to be helping. I was wondering if any of the other readers have tried it and what their experiences were. Please consider acupuncture as a topic for one of your future blogs.

• andrea // Mar 10, 2009 at 6:39 pm

  submission for the next carnival: “Sleep bends”

  “Waking up lately has been similar to the bends, albeit not for the same reasons, nor as deadly (I’m not making light of a serious medical issue). But for whatever reason, many of the symptoms are quite similar: joint pain, headaches, nausea, dizziness, muscle fatigue, seeing spots, and sometimes numb or tingling fingers.

  Not surprisingly, it’s hard to get out of bed… “

• Susan // Mar 11, 2009 at 6:08 am

  Strength in Weakness

  http://james1-5.livejournal.com/12155.html

  http://james1-5.livejournal.com/

  I have suffered from chronic daily headaches/migraines for the last 10 years. Those who love me dearly want more than anything for me to be healed from my physical suffering. I hate chronic pain, but I love the depth that it has created in my relationship with my Lord. There are many invaluable lessons to be learned through our painful journeys.

• Bonnie Boots // Mar 18, 2009 at 5:51 am

  One aspect of chronic pain that’s seldom mentioned is how hard it hits our pocketbooks.

  Pain diminishes our ability to work. Doctors and medications are costly. That can make a bad economy extra hard for pain patients to handle.

  But as the old saying goes, there are two sides to every coin. ”Here’s Why A Bad Economy Can Mean Good News For Pain Patients” at http://painhealthnews.com/archives/45 explains two benefits to being broke.

  My name is Bonnie Boots. I recovered from years of totally disabling chronic pain to return to work as a professional writer and designer. Pain Health News, both the web site and blog, deliver information and motivation to people living with chronic pain.

  Blog Name: Pain Health News
  Blog URL: http://painhealthnews.com
  Web Site URL: http://www.pain-health-news.com

• Sa'ra // Mar 18, 2009 at 9:14 pm

  I too would love to hear more about acupuncture as related to chronic pain.

• Gin // Mar 31, 2009 at 12:40 am

  I understand the importance of seeking comfort when there seems to be none for those suffering and we can all do our best to provide comfort the best of our abilities with what is available. Good topic! Here is a request I had receieved on a topic of concern that might be of interest.

• Louise // May 19, 2009 at 1:27 pm

  Thank you for this great topic of What You Get Out Of A Psychiatric Evaluation. When we deal with a pain condition, it is somtimes very difficult to accept that we need psychological help or a psychiatrist evaluation. We feel defeated to do so, even more sick and helpless, embarrassed and often mad at life and at anyone who hints we need to see a psychologist. I have reflected on this topic for years and years, being the kind of person that did not want to see a psychologist. I did, of course, with time. I stopped thinking I was strong enough to go through pain alone. I arrived at the conclusion that whatever helped me and did not put my life in danger was okay. Any tool to make me feel better was another tool in my pain toolbox and that was okay too. We are not invincible, we are just humans. Other humans can help if we let them do so. We must take the chance. If we don’t take chances, what perspective do we have left ? The answers come pretty fast. I hope this topic will offer a solution we did not yet want to try.
  This blog is the best thing that I have found yet on the web. Good work and great spirit!

  Louise

• How to Cope with Pain // May 19, 2009 at 4:52 pm

  Thanks for the feedback, Louise. It’s helpful to hear how you went through the process of finally accepting this type of help. I agree with your thoughts of “1 more tool in the toolbox.”

• Shauna // May 29, 2009 at 7:19 pm

  I would also like to add your blog to my sites of note–blogroll! If this is ok with you….

  Shauna

• Shauna // May 29, 2009 at 7:26 pm

  What a great site you have here!! So much fantastic information!

  I’d like to submit a post I wrote about the format that most doctors and nurses use, (I am a nurse–a newly retired one due to my pain, it is so hard for me to write that!), and this information can help the pain patient be aware of what the doctor needs to ask and do to come up with their plan of care, or the doctor’s DX. I believe an educated patient has a better chance at a good doctor/patient relationship, and will understand their DX much better. I’d be honored to be considered!

  Thank you,
  Shauna Harrelson

  ‘Telling Your Doctor Your Subjective Symptoms’

  http://shaunaslifeinpain.blogspot.com/2009/05/telling-your-doctor-your-subjective.html

  ‘Shauna’s Life In Pain And Other Fun Things’

  http://shaunaslifeinpain.blogspot.com

  (I wrote all this once but it didn’t seem to go through.)

• How to Cope with Pain // May 29, 2009 at 7:57 pm

  Shauna, thanks so much.

• How to Cope with Pain // May 30, 2009 at 7:04 am

  Shauna, very nice blog you have. I’ll add you to my list for a future pain-blog carnival.

• Pain Relief - The New Science // May 30, 2009 at 10:04 am

  http://www.the-new-science-of-pain-relief.com/56029/50850.html

  The Free Online Class Section has been updated with some great videos.

  Hope it helps, Dr. Connelly

• Alexandra Carmichael // Jun 1, 2009 at 6:16 pm

  Hi, I’d like to suggest posting a call for participants for a live, ongoing Migraine study. (below)
  Thanks for your consideration!
  Alexandra

  ———

  Subject: Participants Needed for Online Migraine Research Study

  Alexandra Carmichael, a scientist whose mother has lived with migraine for 30 years, is conducting a study on migraine through the website she co-founded, CureTogether (http://www.curetogether.org/Migraine/). Specifically, she is gathering self-reported data on symptoms, treatments, and triggers for migraine. Her goal is to discover associations in this data to help characterize which migraine treatments work best for patients with different groups of symptoms. With enough women, a genome-wide association study can be conducted to locate any genes or genetic regions that are associated with migraine.

  There are currently 293 people with migraine who have joined the CureTogether study. A genome-wide association study requires 1,500 patients, so at this time Alexandra is calling for people with migraine to join the study. Participation is entirely voluntary, anonymous, and completely confidential. It involves joining the CureTogether study at the website provided, then checking off and rating symptoms and treatments. It should take 15-20 minutes to complete. Statistics for the study are posted live so you will be able to see them after completing your entry. You will also be notified when the genetic study is set to begin, with an option to participate or not.

  About CureTogether: CureTogether helps people anonymously track and compare health data, to better understand their bodies, make more informed treatment decisions and contribute data to research.

  If you are interested in learning more about the study or to participate, please visit CureTogether (http://www.curetogether.org/migraine/) or email Alexandra at alexandra@curetogether.com.

  —————–

• len // Jun 8, 2009 at 10:28 am

  i would like to hear more from people who have had back surgery for spinal stenoises, and now suffer from failed back syndrome. how are they treating this conditions, treatment, medications etc. if there are any success stories in the treatment of failed back syndrome, please share them with those who suffer from this condition

• Esther // Jun 22, 2009 at 7:42 am

  Have you seen this one?
  http://chronicpainaustralia.org/

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