Family Issues #2
Today’s post is the second in our Friday series about family issues and your pain. As we discussed last Friday, pain conditions affect not only you, but also your family. Your husband or wife… your children… your Mom and Dad… even your friends.
These posts are excerpts from a handout for family members (and friends) of patients with pain that I’ve written with a colleague, Dr. David Kannerstein, who is the lead author. The excerpts are reprinted with permission from Practical Pain Management, 2007, Vol 7, 48-52. We’ve written this handout to provide information for family members and to help them with what they’re going through.
You’re invited to copy these posts and discuss them with your loved ones. If you’d like a copy of the complete handout, information is available at the end of today’s post.
Let’s look today at a few more questions that your family member might ask…
4. Is the pain all in my loved one’s head?
Chronic pain is rarely imaginary (psychogenic) or simply a way for your loved one’s psychological problems to come out. Even if a patient is referred to a pain management psychiatrist or psychologist, this rarely means they’re imagining pain. The pain is real.
However, negative emotions such as depressed mood, anger, or anxiety can play an important role in making pain worse. For example, anxiety or anger can cause an increase in muscle tension leading to more pain. Post-Traumatic Stress Disorder (PTSD) causes one’s nervous system to become very sensitive and can make it harder to recover from a physical injury. Certain types of personalities may find it more difficult to cope with pain and/or the losses and disabilities it brings. For example, some people get much of their self-esteem from working and can’t tolerate being disabled.
5. Could they be faking it, say, to get out of work?
Faking pain, on purpose, to get out of something or to get a reward is known as malingering. While it does occur, it’s rare. Most patients feel very guilty about not being able to do the things they used to do, whether working at a job or taking care of their family around the house. Very few patients with pain make more money out of work than working. Most suffer severe financial losses.
Unconsciously producing symptoms to get rewards or get out of unpleasant things is called “secondary gain.” It’s rarely the cause of someone’s pain, although it sometimes may reinforce a negative situation. For example, someone on disability may fear vocational training because they’re afraid to lose their income, in case going back to work doesn’t work out. For some, there may be positive outcomes that make it easier to accept one’s situation. However, for most pain patients, the losses far outweigh the gains.
Remember, this is a family challenge, not just an individual one. Try to see it as one that you’ll face together – ‘we,’ not ‘he’ or ’she,’ will fight this together.
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Next Friday… Family Issues #3: As a family member, how do I take good care of myself, too?
You’re welcome to copy this handout from this site, with a notation that it’s from www.howtocopewithpain.org. For a copy of the complete handout, you can contact my co-author Dr. David Kannerstein at dkanner@comcast.net. David Kannerstein is a psychologist in private practice with Margolis Berman Byrne Health Psychology in Philadelphia and SRI Psychological Services in Jenkintown, PA. He specializes in helping individuals and their families manage chronic pain.
5 responses so far ↓
Suber // Jan 30, 2007 at 3:48 pm
I’m not sure what it means to say that pain is imaginary. If a pain feels some way to the person who is experiencing it, then the pain is real. In other words, it is not clear how one can make the appearance/reality distinction with respect to pain. The way a pain appears is the way it really is.
HTCWP // Jan 30, 2007 at 5:11 pm
Often family members can’t believe the way a patient reports pain could possibly be true… ” It can’t be so severe” or “It can’t be so long lasting,” etc. If a family member hasn’t experienced chronic pain, sometimes it’s hard for them to imagine. What family members doubt is if the pain is truly as reported by the patient.
Friends, Family & Illness | The Daily Headache // Jan 28, 2008 at 4:17 pm
[...] once a week. Last week’s post answered questions that family members might have, like “Is the pain real?” Here’s part of her response: “Faking pain, on purpose, to get out of something [...]
Karla // Jun 6, 2009 at 6:00 am
I have been dealing with chronic lower back pain for many years, had a diskectomy that relieved it for a few years, and now it is back. An MRI revealed severe osteoarthritis and several spurs and I am now seeing a pain specialist for surgical-free pain options, none of which have worked yet.
My husband asked me if I am actually dealing with sympathetic pains. If my pain is actually a ‘memory’ of the pain I had before my operation. I know my pain is real, but how does a person prove their pain is real? I thought that my daily suffering was evident enough. I guess not.
How is pain proven?
How to Cope with Pain // Jun 6, 2009 at 7:19 am
Karla, guess what – you can’t prove pain! You’ll be interested to know that by definition, pain is a subjective experience. Only you know what pain you’re experiencing – type of pain, level of pain, where it is, etc. So only you can say what pain you’re having.
That being said, researchers are trying to find imaging that can help them know if someone is in pain and what pain level she’s having. We call this “functional” imaging, because it’s not a 1-time picture, like an xray, but an ongoing picture of brain functioning. Functional MRI’s may answer this question of “is there pain?”
Your husband’s actual words may be on to something else, however. Your current pain isn’t just a memory of your previous pain, in the sense that, now, you’re just imagining it. However, your brain could partly be experiencing pain because you had pain in this area before. We know that chronic pain creates more chronic pain. Your brain, in this sense, may remember pain.
For example, if a person has pain in his hand before it’s amputated, it’s more likely that the person will have phantom hand pain – pain in his phantom hand.
I hope your husband continues to educate himself about how to be helpful to someone in pain! Good luck!
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