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Abdominal Pain Due To Adhesions

April 15th, 2009 · 97 Comments

Today’s article is a story by a reader Aimee who experienced abdominal and pelvic pain for many years.  She hopes her story brings attention to adhesive diseases.  On Friday, I’ll provide more information about adhesive disease.

My name is Aimee A. and I am 45 years old.  I am the youngest of 3 children and have the most supportive family.  They are my best friends and my constant caregivers – emotionally & physically.  My husband Jim and I have been together since 1998 and have gone through the past 6 of my 7 surgeries for abdominal adhesive disease. We finally were able to get married in 2000, when I was feeling well enough, after multiple surgeries delayed our plans.  I’ve been a Gynecologic Oncology RN for the past 13 years and feel I have a true calling.  I have a strong passion for what I do and pride myself on being a true patient advocate.  I feel that all I have been through over the past 30 years allows me to care for my patients more effectively, and with not only sympathy but empathy.

My first abdominal surgery was in 1978 when I was 13 for unexplained weight loss, nausea/vomiting, and abdominal and pelvic pain.  At the time, “adhesions” or “Pelvic Adhesive Disease” was not mentioned.

The years following the surgery were wrought with innumerable doctor visits as I continued to have upper abdominal pain, bloating, nausea/vomiting, constipation, and weight loss.  I was treated for ulcers for the most part and given multiple pain medications to use when I had pain.  I was also regularly referred to psychiatrists, since no tests showed any cause for the pain.  Not only was I dealing with severe pain, but also with the medical community doubting my own assessment.  I had many more surgeries that found lots of adhesions, and tried to eliminate them.  [Note:  adhesions are scar-like connective tissue bands that form between tissues.  They often occur after surgery. -HtCwP]

It’s difficult to simply sum up the effect of 30 years of pain caused by abdomino-pelvic adhesive disease.  I never allowed pain to rule my life.  Not to say that it didn’t have an affect, but I found ways to cope.  I had to take varying pain medications on a regular basis to function – but function I did.  I never missed work unless I was hospitalized or recovering from surgery.  I never allowed it to interfere with life outside of work – except for life issues of marriage and having children.  I was advised that it would be very difficult for me to go through a pregnancy and ultimately didn’t have children.

With each surgery, I prayed it would be my last and that I would be able to live a “normal” life.  As I became educated about adhesive disease, I was aware that with each surgery, the problem could become worse.  This is because as adhesions are removed, more form.  This can cause a cycle of adhesions causing pain, but surgeries causing more adhesions and thus more pain.

What finally helped me was using a membrane product which works to prevent adhesions.  I’m still realizing the benefits today.  My advice to anyone who undergoes abdominal surgery is to ask the surgeon if they utilize an adhesion barrier in their practice.

My experience has helped make me the person I am today.  I’ve become a very knowledgeable and compassionate patient educator and advocate.

I appreciate Aimee telling her story and being an advocate for patients, not only with whom she works, but others by sharing her experiences.  On Friday, I’ll provide more information about adhesive disease.


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97 responses so far ↓

  • Sarah // Apr 10, 2012 at 3:08 pm

    Hi, just read all of this. I just got out of hospital here in the UK, for a small bowel obstruction. Last year I had to have colorectal surgery and apparently it is adhesions due to this. My surgeon said he is sorry but it can happen after any abdominal surgery. I found that i was eating high fibre (a doc advised me too wrongly) and this contributed to the obstruction. Since leaving hospital I have had a low fibre diet and yes it’s hard but it has helped. I am not like lots of you in the situation where I may be offered surgery to remove that adhesion causing problems. It’s a difficult situation.

    I just wanted to mention that there are diets on the net for ‘low fibre for bowel obstruction’. It’s hard I find trying to be healthy though, for someone who has always snacked on fresh fruit and veg. Cake and biscuits seem to be tolerated better. Just now am getting Ensure drinks on prescription but can’t live on them forever!

  • Michael // Apr 12, 2012 at 4:29 am

    Hi,
    I’m a 20 year old female who got sick in May 2008. I remember the pain so vividly, I thought I was having a miscarriage. Luckily I wasn’t. Though sometimes I wish that I had. After 3 years of back and forth between a group of WELL-PAID physicians I finally met an ob/gyn who agreed to do a procedure I had never heard of from any of the other doctors: laporoscopy. That is when I discovered adhesions. Since then my ob/gyn will not take me for anything other than birth control shot appointments (which are pretty useless seeing as how sex is incredibly painful for me in the first place). Reading these stories doesn’t give me hope. More than anything it scares me. I don’t want to be an adhesion veteran. Those three years pre-op were the worst of my life. I had to put my education completely on hold because I was unable to get out of bed for more than 4 hours a day. I had a wonderful boyfriend who is now leaving for boot camp. Every day I spend in fear of not if but WHEN they will come back. I never had surgery or any conditions that could cause this. The fear of not knowing what it was that was hurting me is almost as bad as the fear I now have of when I will be in completely debilitating pain again. To make matters worse I am not allowed to take any pain medication other than Tramadol because my sister is addicted to heroin and everyone is afraid that I too will become addicted to something. I don’t know what to do anymore. I’m just scared of what the future holds.

  • Ginny // May 6, 2012 at 9:40 pm

    I had my first surgery in 1982 it was a emergency c-section. The second was in 1997 for a hysterectomy. Then in 2004 I was rushed to the ER for acute abdominal pain. I was put through many tests only to have a surgeon tell me 3 days later they were taking me down for surgery not knowing what he would find. He said it could be cancer, or they may have to remove my bowel. He just was not sure. I awoke to find that I had small bowel obstruction from adhesions. It is now 7 years later and I am now in acute pain. I have had every test out there. Scoped up and down. CT scans of many and xrays. Now all the Dr will do is give me 2 kinds of pain pills. I have seen 2 surgeons. The second one wanted me to go for a thoracic MRI just thinking that I may have a pinched nerve in my upper thoracic spine area. I did not do this as she herself was just throwing this out there. I believe the
    adhesions are back with a vengeance. I fear that anyday I will suffer an obstruction again and I will be put off and the worst scenario kwill happen. For now I sit with my heating pad and continue the pain meds.

  • Patrice // May 20, 2012 at 10:22 pm

    I can so relate to what everyone has written about this terrible disorder.. I too have been in horrific pain due to adhesions. I had 2 surgeries in 2011 for scar tissue. My first surgery for adhesions was in January 2011.. At that time my surgeon said my entire abdomen looked like a spider web. He was in there for over 3 hours removing it. I stayed overnite in the hospital and was released the next day to go home. In April 2011 I began experiencing severe abdominal pain once again. I returned to my PCP and he had a CT scan performed. The radiologist said there appeared to be an internal hernia, once again I head to my surgeons office, although he does not see in the scan what the radiologist says he has seen he sets me up for emergency surgery the next morning. Upon going inside he finds more scar tissue and inflammation. By November I am in pain once again, my surgeon refers me to a Gastroenterologist, who decides the best route for me is to take Amitriptyline (he wants to trick to my brain into thinking I am not in pain).Needless to say this is not the solution for me. Here it is May and I am once again in horrible pain. I am taking pain meds just to be able to function for small periods of time. Will be seeing my PCP again tomorrow and see what he reccomends.. Not ready for more surgery but not sure how much more pain I can endure. Thanks for letting me vent.. I know you all understand and can relate to what I am talking about.

  • Thomas // Jul 29, 2012 at 7:24 am

    All I can say is that I have been through all of the above for the last 17 years. My Dr. who knows anymore surgery is life threatining to me is now trying to get rid of me. He is well aware of my problem additionally knows there is a foreign object floating around the abd cavity however when the suegeon attempts surgery he does a MRI just before and finds out he now can’t locate it so surgery is put off. The surgeon knows entering my abdominal cavity is life threatining. additionally my pain management doctor is aware of all this.
    To shorten all this I can tell you I have suffered terribly and the only relief is the pain medication I have taken for the past 5 years. However now my pain doctor is trying to dump me. His entire attitude toward me has changed and he continues to change the one medication that has helped me to a medication that causes me more problems and does nothing for the pain, when I try to explaine this to me he does not care or listen to me. I at this time don’t know what to do. Can you offer any ideas to help? Suffering in Canton, Ohio
    Thanks, Thomas

  • Dixie // Aug 8, 2012 at 12:40 am

    Hi, I was sitting down here crying i just had my 4 surgery to removed adhesions, I am so tired of the pain, and I am still in pain, I just don’t know what to do, i just want to be normal, I try to explained it to my family, they just don’t understand, my Surgeon Doctor is not compassionated, he just gives me pain medicine, I think I need to see a Therapist, I going crazy, I am getting depressed, and still in pain, I can’t keep a job, I applied for ss benefits waiting, I need to work to take care of my family, I will be homeless if I don’t get a job soon, but it is hard because I be so sick and in pain, that I missed days, please somebody tell me what to do

  • Annalisa // Aug 11, 2012 at 6:46 am

    Dixie, hold on ! Its going to be okay . Please , do not give up! I know it’s difficult and easy for me to say. But, I have been in pain and in and out of work too. Just know that in the meantime you can go to your local church ask for help emotional, and financial. If you can’t then go to your local food pantry for assistance there might be help with your bills to call 411 that is a connection to the united way they can help you find help. You can get free counseling , and qualify for a number of grants. Also, you can get help filling out your ss disabilty forms through the united way. If you can not find help I can say it is easy to fill the forms out with the help of a nurse at your dr.’s office. Hope you find someone to help you. Good luck and God bless you. I do care about you and know your feelings of hopelessness – just know it gets better!

  • rhonda // Aug 23, 2012 at 2:55 am

    Long story short. I have had seven abdominal surgeries. 2 surgeons stated the wouldn’t work on me again because I am a mess(severe adhesions). I guess what I want to know is how do you get dr’s to listen to you. I am in pain. Not only that but back in July my back inflamed the mri showed disc profusion. The Dr sent me to physical therapy but upon looking at my surgical history the pt said that he believed the adhesions are adhering to my spine and thatis whatis causing back problems. PT also said because I have mesh(because I got a hernia from all the surgeries) the can notngo in and break the adhesions up. Anyone heard of that? Any suggestions.

  • Desi // Sep 11, 2012 at 6:55 pm

    Hi Dixie, Randall and to all of you. I feel your pain and your anxiety/depression. It’s been 2 years since I last posted here. I have steered a new course comprising of some pretty strong pain relief when I need it and am trying to live with my problem as if I have surgery it will entail removing a large portion of bowel, it is all stuck to my abdominal wall too, and my surgeon tells me it will be very dangerous surgery, and cannot guarantee it won’t kill me. I go through so much pain, and someone else said here, how they wish for one day free of pain. I say the same thing myself. I don’t take the pain medication daily, reserving it for the worst days. Just recently I have been experiencing obstructions which resolve themselves at least a couple of times a week and manage this at home with sips of water, pain relief, and cross my fingers. I can pinpoint this site as I get very loud gurgling like blowing a straw into the bottom of an empty milkshake container in unison with the painful cramps. On the opposite side I have continual pullling pain and occasional obstruction. I saw my surgeon yesterday and off to have another colonoscopy to make sure there is nothing else going on. Years of low fibre diet he says can contribute to other problems like diverticulitis or bowel tumour so we have to rule that out.

    My surgeon has been with me for nearly 20 years and is very sympathetic and up to date. We have used Seprafilm, good for a while, but as always problems pop up in other areas.
    He has actually said with sincerity how sorry he feels for me. He knows I fear the surgery and he does too. We will cross that bridge after this next exploration.

    However, I still feel I want to pursue the path of pain relief rather than surgery, and am wondering if I should see someone skilled in pain management. I get around my low fibre diet, by making good healthy decisions and avoid cake and biscuits as much as I can but know that we can get hungry without fibre, but suffer if we eat it.

    Until recently I feel I have managed at times to put the pain into a little pocket subconsiously, accepting that it is part of me. Some days are harder than others, and wish that my coping mechanisms were better. So I try not to beat myself up if I have a weak day, take the pain medication and ride through it. I am one who gets bored and feel like I have wasted a day though, which is very frustrating to me.

    In earlier times, I really feel that I was not prepared for what was ahead of me. I still think some Drs are incapable of good communication. They tell you what they think you need to hear. Telling you that adhesions only recur with more surgery so try and avoid it, doesn’t give you the right information. Telling you simply that you need to learn to live with it, is not good enough. It leaves you feeling like you’ve just wasted THEIR time. They need to explain in DETAIL the ups and downs of surgery, fully explain your diet, how pain management can help, to think seriously of it as an alternative and give it a go. Tell you how they know you are experiencing terrible pain and believe you when you say you need pain relief and not feel like a whinger. Of course, unresolved obstructions always need surgery, been there many times and prayed I didn’t need it.

    If I can get through the bad days and cope with the pain through good pain management, that’s my preference now.

    We are not alone and believe that other people should respect the complex nature of this debillitating condition.

  • Lynn // Sep 18, 2012 at 7:51 pm

    Kathie – I want to know what people are taking too. What works and what doesn’t???
    Also, please know that with most, if not all barriers, they absorb into your body
    1) Hope your body accepts the barrier
    2) as it aborbs that nothing haywire chemically within your system
    3) at the point after it is absorbed… adhesions come back
    ** It has been apx 10 years since I had a barrier placed, Adhesions are back with a vengence. Took me awhile to realize(accept) what was going on and then one day I doubled over as I was doing something… oh that was I a pain I remembered well (the adheshion has wrapped a muscle and nerve – the way I bent over… was like a sharp knive …
    10 years ago one of the best ways of pain relief were shots.. now let me tell you.. they were painful themselves. But it relaxed the muscle and gave the nerve room. Unfortunetly what happens is that for whatever reason the length of time the shots/pain med works is less and less.. within a year, I am usually done and begging for surgery. I had Endo and then adhesions..
    As far as doctors go.. Don’t let them say it’s in your head .. keep going to other doctors .. keep pushing. Also know, that they may finally see one or realize “something is there” once you have surgery, they are usually larger and wrapped around more than anticipated..
    Shoot .. copy these blogs put them under your doctors nose and ask them to refer you out. You are your own best advocate. Don’t be bullied.

  • Desi // Sep 22, 2012 at 5:09 pm

    Kathie & Lynn. This is what I do re pain management currently. I have two types of pain, pulling and obstruction. So I will refer to each separately.
    Pulling pain. This exists as a “soreness” most of the time. The Dr can examine me at this spot any given time and will result in me jumping off the table when he does. When it is just sore I either take nothing or take a milder prescription medication, Digesic – Combined Paracetamol & Destrophropoxyphene, then progress to stronger medication Panadeine Forte – combined codeine & paracetamol. Then finally when very bad take Endone – Oxycodone Hydrochloride. Unfortunately this pain can last several days with lots of rest before it settles. I cannot even stand my underwear pressing on this spot so I have my loose “undies” for these days especially.
    My Dr says I should be in hospital, but as I know I am not obstructing I don’t go most of the time. When I get repeated bad episodes over a few weeks sometimes I give in to it and go to private emergency dept who admit me through my surgeon.

    For the obstruction pain when it happens, cramping & severe pain I get on the left side which is apparently still small bowel with me, it has been proven many times that even Endone does not touch the pain therefore in the few couple of hours of this occurring I don’t bother to take anything at all, there is no point. No point as we all know that anything that is codeine based slows up your bowel and constipates you which is not a good thing when you are having an obstruction. If the obstruction clears, it’s like the dambusters happening (my Dr’s description which I thought was pretty spot on) I am still left with some smaller spasms but my bowel feels like someone has twisted my whole insides until the pain settles – this can be several hours. I then take pain medication as I feel pretty wrung out – Endone firstly in this case and as it eases up downscale to Panadeine Forte. If it doesn’t clear I definitely have to go into hospital.

    When I take Endone or Panadeine Forte for the pulling pain, I need to also take stool softener and extra laxatives to help avoid constipation.

    If the pain for either reason does not settle within several hours and is still at a high level, my Dr wants me in hospital so that they can administer Morphine injection under the skin which apparently administering this way (not intra-muscular) does not constipate patients like us. I hate these, they hurt, but at least it means better pain control.

    And then we all cross our fingers that it settles and we don’t need surgery!

    I live in Australia, so I don’t know if you get those medications in the US, but I am sure you would have equivalent.

    I am going through a bad patch at the moment as having obstructions at least one or two a week which eventually do clear, but do wonder how much pain is considered too much pain to put up with sometimes and wonder what on earth the solution is. I think nothing and that can be pretty depressing sometimes, so I make the most of my better days and try to not let it get me down. I feel like I need some help with coping mechanisms to help overcome the lifestyle this presents. I find myself cancelling so many things I’d like to go to, it is life interfering. I have been officially “retired” for several years now, as I am too unreliable to hold down a job. I’m 54 and have had this problem for 30 + years. Lucky I studied art when younger and have turned to that as my saving grace. It is meditative but also have managed to make a living from it, and can schedule it into my life on my good days. There’s a painting frenzy going on on those days! :)

    Hope this helps.

  • Desi // Sep 22, 2012 at 5:26 pm

    Thomas, you sound like me. Any more surgery for me is also life threatening. I haven’t seen a “Pain Management Dr” but believe I need one as I wonder if I can do better.
    I cannot help but think we certainly do need coping mechanisms as this condition is so frustrating.
    I don’t know what others here think, but I feel because people cannot see it and that it is actually a scar tissue disease the average person thinks there is nothing wrong with us. I’ve had people tell me at times, well at least you don’t have cancer you should be glad it’s nothing like that. Well yes I am glad it’s nothing like that, but it is something else not to be taken lightheartedly either. It is debilitating and life-long in our cases, years of suffering with no cure that can be offered.
    It’s a pity here that posts cannot be directed to our emails because we cannot be updated by others about their experiences or ideas that could help.

  • Pat // Oct 11, 2012 at 8:47 pm

    Coping with pain: I’ve dealt with adhesion pain for over 25 years, my pain is felt on the pelvic left side. I can’t say if this will help you but it has helped me. I take Elavil, at the lowest dose possible, and only when the pain feels unbearable. Elavil is an anti-depressant but the Dr. explained to me that it can work to “trick” the brain into not feeling pain. I also try to keep my bowel healthy, I have taken probiotics, I take Superfood greens in fresh whole fruit juice daily (you will need a Vitamixer for this). I live with daily pain that is tolerable but when I feel the pain starting to escalate I will do a bowel cleanse. I would say this works about 80% of the time to lower the pain. Many years ago I had Physical Therapy to break up the adhesions, this helped a little but enough that I would consider doing it again. Last but not least, I pray and I have others pray for me. Do not forget the power of prayer! I’m thankful there is now a place where people with this problem can find help and understanding. I hope this can be of help to someone.

  • Desi // Oct 15, 2012 at 7:23 am

    OK, apart from the pain issues, does anyone have awful trouble with extensive bloating whenever you eat anything, even if it is no or low fibre, or even just milky fluids?

  • Lana // Oct 25, 2012 at 12:41 pm

    I was wondering does anyone know of a doctor who can actually help with this in or around Dayton Ohio area. I had a surgery for endometriosis last yr and an oopherectomy , the doc ended up perforating my small intestines. I then ended up with pertonitis ,septic and now all of my organs (I was told are stuck together from adhesions. I have been to Ohio State and Cleveland Clinic , I am not even sure who to see or what to do. I feel like there is no one to help!

  • How to Cope with Pain // Oct 25, 2012 at 12:46 pm

    Lana, Cleveland Clinic pain service is excellent. I don’t know anyone else in the area. Anyone else?

  • Bruno // Nov 9, 2012 at 11:24 am

    Twelve years ago I had a bowel resecction. They
    removed sixty per cent of my rectum and a foot of my colon. All because the GI Doctor failed to tatoo the cancerou polyp. Less radical surgery would have been performed. I have been suffering from adhensions ever since. I am contimplating surgery to cut the bands. What has help is MIRA LAX every day.

  • Lisa // Dec 18, 2012 at 11:19 pm

    I would love the email addresses of some of these people as I need people that understand what I am going through. I also suffer horribly with adhesions to the point where I want to die. If I could have a support network of people that I could talk with that would be great. I feel so alone with this situation. My friends don’t understand what I am going through or the pain. I have had at least 11 surgeries for blockages and adhesions. This sucks! My life was normal for about 3 years now it is pain every day to the point of wishing I was dead. I take no pain medication. I am not sleeping from the constant pain. I wonder why I am still here on this earth like this. Heaven is my home some day. What a glorious day that will be. NO MORE ADHESIONS! I will be whole again. So please any one who would like to share there e-mail address with me would be great! Thanks and my prayers are with everyone here going through this hell!!!! Peace and prayers!

  • How to Cope with Pain // Dec 19, 2012 at 6:51 am

    Lisa, you might also want to check out some of the chat areas at the national pain foundations websites. They have moderated chats specically for the reason you write about – to connect with others and not feel so alone.

  • Angie // Dec 27, 2012 at 7:06 pm

    I’m getting prepared for the start of my visits to clear passage as they’ve expanded their practice to Colorado now. The distance thing was the only thing holding me back from going a long time ago. Years of unexplained pain. Being told I was crazy. Drug seeking. You name it. Finally the adhesions got so bad that on one of my V.ultrasounds ,despite the fact that past ultrasounds showed “a healthy uterus”‘, I was diagnosed with a bicornate uterus. This prompted a lap. Thank God. I’m not sure how a medical professional explains a normal uterus a year prior and then all of a sudden a bicornate uterus. As if by some sort of spontaneous splitting uterus. Highly unlikely. But up until the laparoscopic procedure, my doctor convinced me and himself that he must have just missed the diagnosis the first two ultrasounds. He never admitted any oversight to the fact that he should have considered adhesions. Upon completion of the diagnostic lap, it ended with an adhediolysis for significant adhesions wrapping around my uterus so tightly that it managed to nearly sever it apart, which was why it appeared on the VU result that I had two uteruses. It was not until this point that he admitted that I must have truly been in a lot of pain. And in pain I was. But now, years later, I know in my whole heart and soul that the adhesions are back , now wrapping themselves around my bowels for I can not have a normal BM which is very rare for me. I’ve lost 25 lbs in the past year. Bringing me to my 7th grade weight of 105. My IBW being 125-130. I suppose much of my weight loss is due to the fact I am too scared to eat much or eat solid foods. For the pain afterwards is unbearable. I am in child bearing years and would love a family but I know in my heart and soul again that the adhesions are blocking my Fallopian tubes. My same doctor will not acknowledge any of these symptoms or complaints, and I am back again to the drug seeking status. Which mind you, not once have I gone in asking for pain meds. Not once. They hear the word pain, and assume. It’s as if they also truly hear me asking for pain meds. Even charting as such when again, not once, have I asked for them.
    So I am now taking matters into my own hands and am scheduling my visits with clear passage. Very excited. I have been blessed with an education in the medical profession so it is easy for me to understand the ins and the outs and all the medical jargon. I can not imagine how frustrating it must be to go to these appts and not understand any of the truth or the bs the doctors spew. But one thing stands certain, our medical professionals need to be our voices. They need to start acknowledging this. But money talks. Not until all the adhesion patients stop giving so much money to the medical profession and instead to places like clear passage, will they start listening. Right now, adhesions bring in more money than most other ailments. Why would they want to find solutions? They will not. Not until we adhesion sufferers start going to more non traditional practitioners and stop feeding the medical coffers. All you do when u schedule another surgery is ensure a repeat visit or two or three for these greedy medical CEO.s. I believe with everything after much research that physical therapy and manual manipulation is the only way to the path of wellness. At least until the industry starts listening to us and starts the finding and research protocols to get a barrier method approved. And one that is actually effective. That will take years even when it does get approved to be researched. Right now, there’s only one place to go with a fairly decent percentage of success, but it is in Germany. And that is not realistic nor an option with insurances for most people. I don’t know about you, but I work. And I work hard. I own 2 businesses and taking off for Germany for such an extended period of time, depleting my bank account, is not an option. I think I will save that time and money and book a 6 week stay on a boat in the Caribbean or a tour of Europe once I am feeling better post PT:) I finally, for the first time in years, have a positive outlook for my prognosis:) and positive thinking alone is half the battle. It does release feel good hormones that no medication or drug can mimick no matter how synthetic or how natural it may be. There’s nothing quite like the real thing. Good luck to you all. I hope many can at least consider what I’ve written and stop feeding these greedy people and start rewarding places like clear passages for their ongoing continued efforts to truly help us. Because it is these groups that are light years ahead of our traditional medical profession. Even the health insurance companies have woken up, have seen results which ends up costing far less cash overall. So they will now cover these PT sessions. Of course, it does take a bit of help on the patients part. But it will get easier and easier the more we speak out. Thanks for listening.

  • Tamara // Jan 29, 2013 at 2:46 pm

    Can anyone tell me please? I had a hysterectomy in 2001, due to ovarian cancer. Recently, the end of 2012, I have been experiencing low left side abdominal pain. I went to the urologist — he did blood tests, cystoscopy and a CAT scan. No reoccurrence of cancer or anything else he could see. He believes it is adhesions. Really, 11 years later?

  • Jackie // Feb 17, 2013 at 11:03 am

    I can’t believe how similiar all your stories sound to what is happening to me now. I had early problems with abdominal pain around 12 or 13 years old which was never diagnosed, but I was lucky the pain went away.

    In my thirties I had an ovarian cyst removed, a gallbladder removed, and a partial hysterectomy later. Recovery always took me longer than normal. One doctor seemed to get mad at me because I needed an extension on my leave from work. Another one laughed at me because I was hunched over in pain. He thought I was faking.

    However I was able to carry on a normal life until October 2011 when I had a colonoscopy. Two days after the procedure my abdomen bloated to twice its size and the pain was unbearable. Now the story is the same as everyone elses. I was in and out of doctor’s offices, emergency rooms, every test they could think of and when the tests showed nothing I was labeled with constipation and given prescription for laxatives. They also told me to eat fiber which made pain and constipation worse. I finally learned to eat low fiber foods and at least I am not in the hospital. However, I was forced into early retirement because of the constant pain. Nobody has mentioned adhesions, but now I have something to take to my doctor.

    Recently, I thought I was making progress towards recovery until I accidently lifted my granddaughter after she hurt herself. Now the pain is back and I don’t know how to get it calmed down again. Spend most of my time on couch watching TV to not think about my problems. It is comforting to know others out there with the same symptoms so that now I know I am not crazy and it is not something I did wrong to have this happen to me.

    Thank you.

  • Diana // Feb 24, 2013 at 2:38 pm

    I just recently ‘stumbled’ onto this website while doing more research on pelvic adhesive disease. I was diagnosed with this disease in 2008.
    I was originally diagnosed with endometriosis after my first and only child in 2002. I had a partial hysterectomy (left one ovary) in 2004 to try to better ‘manage’ the endo. Thus began years of pain/surgery/medication and suffering.
    I found a massage therapist who specializes in adhesive disease and has years of experience dealing with this bothersome and painful disease. She does deep tissue treatment and is able to help (temporarily) with the pain. She is the one that turned me onto cold pressed castor oil wraps. She believes the cold pressed castor oil actually penetrates and starts to desolve the scar tissue. I have not had enough experience with this treatment yet to know if it actually helps or not, but at this point I’m willing to try just about anything for relief. I figure it can’t hurt.
    Just this last summer I was experiencing a ‘new’ pain in my abdomen and symptoms were presenting in a different way than usual so I scheduled an appt with my gyno. As many of us know, our body knows when something is different and out of sorts… After examination, an ultra sound and later an MRI, they found a mass on the ovary that was left from my hysto. My dr had told me after the last adhesive repair surgery that he would not operate on me again unless it was life threatening. After a very long discussion with the dr and my family we decided to operate again to rule out ovarian cancer.
    The dr removed my very enlarged and adhesion-incased ovary, released my intestines (once again) from the inside of my ribs and abdominal wall and sent his findings to pathology. The mass was actually endo that was penetrating and growing into my ovary (not cancer).
    I am now 35 years old, 5 months post op (8th surgery to date) and on hormone replacement therapy.
    I had hoped this last surgery would give me some long awaited relief. Within 3 months of surgery, my pain was back.
    Dealing with chronic pain is exhausting and takes its toll on EVERYONE around you. I have found the less stress in and around my life has reduced some of the symptoms. I’ve promised myself to not depend on narcotic pain relievers to cover up the pain but instead seek out more homeopathic remedies. I continue the deep tissue therapy and I try to exercise as much as possible to keep new scar tissue from attaching (hopefully).
    It’s a long tiring road but with a good support system and a positive outlook I get up and get on with my life one day at a time!

  • emilie // Mar 17, 2013 at 8:00 am

    Hello. Tyou to everyone for have speak up about this painful issue of pain . I suffer for 20 Years .Use every day Pain Killer. Make my life mysery. With low stomach pain and low back pain.. I wish someone come up with an end to this painful life. STOMACH PAIN.
    Tyou for read me.

  • Becky // Mar 28, 2013 at 8:24 pm

    Thank you! I am not crazy. As many of you have said, I stumbled upon this site and have been reading excerpts com my life. 2.5 years ago I had exploratory gym surgery for chronic abdominal pain which found the adhesions. Now pain is back…same area. Very frustrated with drs. My current dr has suggested pelvic therapy which I guess I will try, but something to take the edge off the pain would be fantastic.

  • Shannon // Apr 3, 2013 at 11:34 pm

    Hey everyone. I have adhesions from surgery a year ago. You know how it goes. I received a TON of help from physical therapists that do ‘myofacial release’. They have also given me a lot of exercises to do to strengthen my core muscles and relax my psoais (?) muscle, all which counter the adhesion tension.

    Forget doctors: find physical therapists, massage therapists and Doctor’s of Osteopathy that specialize in ‘visceral manipulation’. And if one doesn’t work, try several. It took me two tries with the physical therapist, first try with the masseuse (she practices the ‘Mayan Technique’ massage), and a physical therapist who helped me regain strength.

    There might be things you can do that have nothing to do with pills or surgery. My best to you all!

  • Lynda // Apr 6, 2013 at 11:12 pm

    I just found this website because I am desperately seeking help with my pain. I am 48 years old and have had suffered with adhesion pain for twenty four years. I have had about a dozen abdominal surgeries throughout the years including c-sections, a hysterectomy (they took one organ a year for three years), and adhesion lysis. In 2003 they went in to remove my right ovary and my appendix and my husband was told the surgery would be less than two hours. After three hours the doctor came out to the waiting room to ask my husband if he was sure I had an appendix. Apparently it looked like cob web city in there. They finally found it and the surgery was close to seven hours allowing me to wake up with an NG tube, a drain in my stomach and bowels that had been manipulated so much they thought I was going to need a colostomy bag. I know one surgery leads to another but my pain was so bad that I was getting a “clean up” every year or two. Now the last time anyone went in was about eight years ago. I have done everything I can to handle the pain, but it has won. I can barely walk, lost my job due to time missed and my health insurance right along with it. Visits to the ER result in a few hours of pain relief because they pump you full of medication but if they do not find a bowel obstruction you are sent on your way home. The other night I went at 3AM and the doc seemed so concerned. She was right on top of getting me meds, into CAT scan, commented about my distended belly and promised me we were going to get me some resolution–then shift change and new doc said “no blockage, here’s a script, follow up with your GI”. I am so depressed I am nearly suicidal and have spent hours talking to my best friend and husband about what I do have to live for. What you also need to know is a little back story, prior to the adhesion pain I suffered several years of gyn problems that no doc could figure out and it turned out I had adenomyosis (endometriosis inside the uterus). Now I feel like no one believes me, and I feel very alone. My husband and one of my three sons are as supportive mentally as they can be, I guess, but my friends are “over it”. I have not had anyone come visit, offer help (my husband has Parkinson’s and my youngest son is the only one living home and he works), or just call and chit chat on the phone. I have the personality that is a little compulsive–I like a clean house, my bay window is decorated for every holiday, I like to entertain, and when I work I am very dedicated (I have never lost a job for not doing my job just for not being able to get there). Sitting around in pain is literally killing me. I have tried chiropractor, pain management, recently Reiki and some yoga. I just don’t know what else to do. I don’t want to be doped up all the time. Anyone have any suggestions to live with this?

  • Soni // Apr 7, 2013 at 1:07 pm

    It’s really heart-wrenching the kinds of lives we’re forced to live because of this pain. I had my last major surgery 8 years ago and still suffer with painful adhesions. I find that I get a little relief with muscle relaxants and massage therapy.

  • kay // Jun 6, 2013 at 1:57 pm

    I’ve had help from my chiropractor using infra red laser. He runs it over my abdomen and it breaks up the adhesions. I’ve spent thousands of dollars trying to get help and so far this seems to be working.

  • Ingrid4 // Jul 18, 2013 at 8:19 am

    Hello I shall keep this brife. I to suffer from adhesive obstruction. I have had only three ops. I have just come home from hospital. I was in for 10 days. The pain went and they sent me home. I cant believe how weak I feel. I was quite fit till I went into hospital. I now have a bad what pain in my right side and a burning in my tummy. I now have to take laxatives to have a bowel movement. I am not sure if that is the right thing to do.
    I am 74 years of age. Sorry about spelling
    Ingrid

  • Maria // Jul 19, 2013 at 2:28 pm

    Hi I’m 48, abdominal surgery in 2006 , now intestine twist/obstruct/kink from adhesion just below the stomach leads to bouts of incredible pain, vomiting, etc as all you know. I have read through everyones posts while having one of these adhesion ‘attacks’. I have a few things that might help, and an article on the use of Magnesium, Simethicone and Acidophilus that I have found helped me stay out of the hospital more often than not.
    I need to say in response to one post, Pilate core work, and strenuous exercise is a sure thing to bring on an attack for me, it makes my intestine dance too much and brings on an attack. But, other than that it’s a mystery as to what triggers it. I can’t find a pattern. Pat wrote about an anti depressant (if it helped with pain I will take it) but bowel cleanse would make the intestine ungulate more causing more spasms. Deep tissue therapy worries me for the swelling it causes, leading again to an attack, though breaking up scar tissue makes sense, as does light exercise, when I do easy, calm, relaxing yoga classes it seems like these attacks don’t happen so often. KAY wrote about her chiropractor/ Infra red laser, to break up adhesion/scar tissue, if it’s working, I will absolutely do it. I hope you will post more about it! In the meantime, I have a pill called Buscopina, it’s a anti spasmodic and if taken at the very tiny first sign of pain, it has stopped the attack all together, but, if too late, it doesn’t help. I am waiting to hear back from a Med Rep friend who says there is something new coming on the market specifically dealing with adhesions, I will post any information I get from him :) Here’s my list of what I found has helped me probably have less attacks than most people; 1-Ginger syrup from Whole Foods for the stomach (it’s an into inflammatory), calms everything, 2- aspirin anti inflammatory, 3-Buscopina taken very early in smallest sign of attack. 4-Magnesium, acidophilus capsule, and Gas X early on as well. READ this article on the Magnesium combo for bowel obstruction and how it may help keep you out of hospital.

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1277043/

    Also this one for open surgery candidates….

    http://www.seprafilm.com/patients/about-seprafilm/what-is-seprafilm.aspx

    I am looking forward to anything new on how to never have this pain in life again, Lasers, pills, supplements, etc, anything….just not more surgery :)

  • Staci // Aug 26, 2013 at 3:12 pm

    I have been suffering from addominal adhesions since 2011. I have been thru a complete GI work up with everything being normal. I was in and out of the ER for severe pain so much they told me I was drug seeking. It was after my hysterectomy in Jan 2013 that my doctor finally diagnosed me. Before the OB GYN could do my surgery, she had to take 30min to cut away adhesions to get to my female organs. I had a baseball size cyst on my left ovary that prompted the surgery. Now I can’t find a surgon to go in and clean out the rest of the adhesions. I live in severe pain. I do take strong pain meds, but I don’t want to live like this forever. If anyone can help me find a willing surgon in the San Antonio Texas area it would be a god send. Another issue is I am disabled and my only insurance is Medicare. My doctor told me that because the adhesions have such a high rate of growing back it was going to be hard to convince Medicare to pay for the surgery. Has anyone else had this problem? All information would be appreciated.

  • Anna Martignetti // Sep 24, 2013 at 1:26 pm

    I JUST got back from Clear Passages Physical Therapy in Gainesville, Florida and I can honestly say it completely changed my life. I feel like I’m living in someone else’s functioning body and can’t believe it’s mine :)

    At 24, I’ve spent the past 14 years in pain and feel like I have my life back. I have exhausted all other options here and can honestly say this is worth every penny.

    For your reference I have:
    endometriosis, Celiac Disease and have had two abdominal surgeries (appendicitis 2000, exploratory surgery which removed adhesions (and created more new ones!) in 2011). I was told I would be “cured” after 2011 surgery only to be in more pain and be diagnosed with Frozen Pelvis by Clear Passages.

    I’m happy to answer any questions you might have- Anna.Martignetti@gmail.com

    All the best,
    Anna

  • Julie B // Oct 2, 2013 at 11:19 pm

    I have been having abdominal pains since the age of 13 and I am now 23 years old (10 years). From the ages of 13 to 16, the pain I was experiencing were constant ovarian cysts; physicians would send me home with some anti-inflammatory medicine and tylenol 3’s or tell me to deal with it. At the age of 19, I was having severe abdominal pains and went to the hospital 6 times, twice by ambulance, only to be told by doctors that it was “all in my head” and that I was faking the pain for “attention”. Until, finally, the surgeon did a laprascopic surgery only to find that I had a ruptured cyst on my right ovary as well as an appendicitis. By the time they took it out, I spent 6 weeks in the hospital with a large abscess needing IV anti-biotics and Morphine every 6 hours for pain.

    Then in July of this year, 2013, I went to emerge with severe abdominal pain with another cyst on my right ovary. They were afraid the cyst was twisted and obstructing the blood flow to the ovary so 4 days later the gynecologist did a laprascopic surgery only to see a lot of adhesion and noticed I had 2 cysts on the ovary. She was only able to drain one cyst because the other one was wrapped in adhesion. I had so much adhesion she was not even able to see my pelvis, my uterus and fallopean tubes. On September 17th, she was forced to do a surgery to open me up due to too much pain. Once I was fully opened up, it was worse than she thought. The surgery was supposed to last a total of 2 hours and lasted 5 hours. It took her 2 hours alone to remove all the adhesion on my right hand side; once the adhesion was removed she had no choice but to remove my right ovary and right fallopean tube due to swelling and blockage. my left side is bad as well. I have 3 cyst on my left ovary but my ovary is too sticky too do anything right now; she doesn’t think my left tube is open because of the adhesion and i also still have lots of adhesion behind my uterus pulling and tugging. I have been back to the hospital 3 times since surgery, admitted for 3 days one one occasion. So after surgery I am back at the beginning with severe abdominal pain, and I am FED UP. One gynecologist came to see me recently in hospital and told me “Adhesion’s don’t hurt.” I told him “You are a terrible doctor than; until you have Adhesion’s attaching themselves to your organs and you are suffering with the pain, you have no right to come here with your stuck up attitude and telling me this.” i realize it may have been rude but as I said before I am FED UP and it is MY health and I am NOT taking any more BS from doctors telling me I’m faking, it’s in my head, it doesn’t hurt and there is nothing there because I am the one losing everything I am the one suffering. I LOVE this site because I realize I am not alone and makes me feel a sense of belonging. So I thank you all for posting your stories because it is helping my emotional state! Much love and good luck to you all!

  • Riennika // Jan 17, 2014 at 4:10 pm

    Anna,

    I want to try clear passage but it is not cheap. It’s also a commitment to go to the locations for a week.

    I had abdominal surgery to remove mass from duodedum. After surgery I have so much pain on one side I think it’s adhesions.

    I tried visceral manipulation and myofacial massage for nine months as well as oesteopath but nothing has worked.

  • Georgia // Feb 3, 2014 at 12:49 am

    Hi, I came across this site by accident looking up some familiar abdominal pain and am shock to see that this problem is no further along since my episode back in 1986. I read many of your blogs and can relate to all of you. I am now 64yrs old but I too had all the same symptoms, pelvic pain, dreadful periods and infertility. Yes it was a severe case of endometriosis with cysts fibroids and adhesion sets. All of the above. I suffered like all of you from age 16 to age 35 when I had my total hysterectomy. My surgery lasted 9 hours with two surgeons working on me. I was lucky to have a wonderful smart doctor who foreseen the complexity of my problem and called in a good friend of his who was the top GYN for oncology gyn in one of Philadelphia top hospitals Jefferson. All female reproductive parts removed including an already infected and rotted appendix, small parts if the small and large intestines. But here I am I survived . Recovery took almost a year and the healing was extremely painful. Remember that all that exposure and cutting will take months for nerve endings and muscles to reconnect. I had no estrogen for at lease 6 months and I was put on a s medication that is given to women who have their uterus removed due to cancer. I cannot remember the name but the surgeon insisted on prescribing it to me due to the endometriosis . He explained at that time that any part or cells from endometriosis will enhance the adhesions again so the medication prevents the growth of endometrium cells. I must say I was a very lucky girl to have Ben in the hands of two great doctors. Yes adhesions grow back , there are meds which can help the bowel pain . I take Liberax . It is a colon relaxer and a nice heating pad or hot bath sock loosens the tightness of any new adhesions. Also when the pelvic area is sore I take Arz for bladder pain Otc it relaxes the bladder. Now for the surgeons and all the fuss with them making us feel we are crazy? Of course they ALLknowbetter. They most certainly are aware of this problem but really have you ever heard of a Adhesion Surgeon Specialist? I haven’t because there is none. Doctors have EGO or they would it be doctors especially surgeons. There are Heart,Lung, Kidney,GYN, Ostopedic, Throat, Eye, Neuron Surgeons ….but have you ever heard of an Adhesion Surgeon? I haven’t and trust me it is a dirty, difficult and non fulfilling job in the medical field. And to top it especially now a days the doctors have to prove with test and MRI s the reason for surgery and we ALL-know adhesions do not show on test. So,this is a double whammy for Drs to deal with and ourselves, I have family in the medical field Nurses and hear from them the drs hate to perform adhesion surgery due to all of the above and in most cases surgery is performed once the patient is in so much pain that there is no recourse.
    I would love to be part of a group if there are any formed to help support this health problem and the fact it is not recognized as a serious problem. I too went through the “in your head” accusations andallmanyofyour blogs talked about

  • Annette // Feb 14, 2014 at 2:22 am

    I have read all your notes and I am not sure if I have adhesions or not. How do you know if that is what you have? I have had this stomach pain for about four years now. At the time it started, I had gone thru some very stressful times. I have been to at least five different doctors, every test you can imagine, and still no one can tell me what the pain is from. And, yes, sometimes you feel like it is in your head. I can do everything, and if you didn’t know I had pain, you would think I was fine, but I live with this pain every minute of every day. Sometimes it is stronger than other times. I have had at least three or four surgeries in my lifetime, I am 62 right now, so I don’t know if it is adhesions or not. I am getting ready to go in for my second scope to see if anything has changed. Very frustrating and sometimes depressing. But it is nice to read that others suffer from unknown stomach pain also. Thanks for listening.

  • Trish // Jul 12, 2014 at 10:07 am

    I am 44 years old and have 14 surgeries to date including colon resection and hysterectomy plus 2 adhesion surgeries plus many more. In 2011 I suffered for over a year with pain on my lower left side. I to had numerous tests and found nothing. I kept trying to ignore it almost wishing it away. Finally I could no longer stand it. It affected my everyday. I had the surgery and adhesions had completely twisted my intestions. They put a mesh to help prevent them but only 2 months later was back in for another surgery. Moving forward the pain is back. It comes and goes like a horrible pulling pain and it keeps me up at night. I’ve been back to the dr and actually went for a second opinion which he made me feel crazy. He referred me to “pain management”. Really? I’ve been down this road before and know this pain!! My problem is I’m afraid they will go in and find nothing and then I will be crazy!! So I keep prolonging it.

    I left there feeling like he thought I was making it up or that I enjoyed surgery. I do not want another surgery but cannot live like this. I don’t know what else to do. I am trying to wish it away again but I know where I’m headed. Any advice or suggestions would be appreciated. What is adhesion barrier? Is this the mesh they put in?

  • Carole // Jul 15, 2014 at 10:32 am

    Like the rest of you poor people on this site I am at my wits end. I have had a laparoscopy in the past for endmetriosis then a few years later after a ongoing battle with the medical professions had an ovarian cyst removed on the right hand side was well for five years but then pain returned with a vengeance. Scans showed adhesion and a kink in the bowel which hospital removed but three months later and another two visits to the er am still in pain and struggling to get back to work as I live on my own and have no where to go if I can keep up the rent. Due for follow up post op appointment in four weeks time but not confident of any better outcome. I live in the UK but can anyone suggest any homeopathic remedies for pain relief.

  • Kim // Oct 23, 2014 at 9:24 am

    I have had 3 ectopic pregnancies. My Gyn went in through laporoscopy( sorry about the spelling) to open up my remaining good fallopian tube so I could get pregnant and found massive amounts of adhesions. He wasn’t prepared to find such a mess in me and said he couldn’t reach the one ones attached high up to my liver, large intestine etc. i deal with intense upper back pain between my ribs after a bowel movement. At times I can hardly walk and it feels like I have been kicked hard in my back with intense heartbeat feeling. The pain is unbearable. I work a part time job and can barely function after 2 hours standing. I have a nerve tingling sensation high in my abdomen and back and alot of stomach loud noises. I pray and ask God to help me all if the time as I am depressed and trying to keep my joy and remember the goid things I have in my life but it is really hard to not be down. Thank you everyone for listening. I have debated adhesion surgery again sgain but like many if you concerned about adhesions returning. Does anyone out there know where I can get”clear passage”treatment in Ohio?

  • Kate // Nov 5, 2014 at 1:39 am

    Hello to everyone on here who is battling abdominal adhesions like I am/was. Two words for you “CLEAR PASSAGE”!!!!

    A little of my history: My appendix burst when I was 7 (1989)…then 20 years later I had an abscess on my ovary and they had to remove that. During surgery they noticed tons of adhesions…bowl resection was preformed as well as adhesion removal. After all those abdominal procedures…my whole abdominal cavity was covered in adhesions!! I eventually ended up in the ER with a small bowel obstruction which was relieved by a Nasal-Gastric Tube (the worst!!!). After that I discovered that surgery was not an option for me because more cutting = more adhesions. I did tons of research and came across CLEAR PASSAGE physical therapy (Gainsville FL). It literally changed my life!!!! My doctor was in Hollywood Fl- Leslie Wakefield…THE BEST!!! It’s a process where they do non-invasive physical therapy that applies pressure on the adhesions till they come apart. It’s s 20 hour process…and a little scary in the beginning…but I feel like a different person now!! No more pain with eating! No more diahreah! No more constipation!! No more feeling like my insides are tearing and pulling!! Ladies…I owe this doctor my life!! Please google CLEAR PASSAGE!! It is the only thing that has worked for me. It was a few months ago and I feel AMAZING!!!! Good luck to you all.

  • Kate // Nov 5, 2014 at 1:43 am

    Kim, Clear Passage is only offered by 8 doctors in our country right now. Their hub is in Gainsville FL. I went to the one in Hollywood FL..she’s the best. I would definitely recommend her. The other states are California, Colorado, and Washington. Unfortunately it is such a new treatment and it takes such expertise, that very few PTs are qualified. Leslie Wakefield-Hollywood FL. I was so surprised by the crazy amazing outcome of the treatment that I even gave her flowers and a gift!!! Who gives gifts to their doctor??!! ha

  • Michael // Dec 16, 2014 at 12:07 pm

    Our son was facing the same situation when he was involved in a bus accident. He has surgical adhesions that forced his body to bend over and cause great pain when trying to have a bowel movement. They did surgery to remove the scar tissue but the very act of the surgery just caused more scar tissue and the whole process had to be repeated over again. To avoid this we went to a place in Florida called Clear Passage (http://clearpassage.com) where they did a specialized physical therapy to break up the surgical adhesions and get rid of the scar tissue. We are grateful to have found them because that stopped all future surgeries with him!

  • Marley // Mar 4, 2015 at 12:05 am

    I had a myomectomy done last January 2014. Fast forward a year later. Never experienced any abdominal pain until now. Went to ER 2 mos ago. Other than degenerative spinal problems and a right sided ovarian cyst, nothing else showed in ct scan. I was pumped with morphine so much so I came home feeling sick. I have a horrible pain under belly button and to left mostly but other times i feel all over abdo and pelvic area. I’m at wits end, really. Followed up w/ my Gyn, they did a transvaginal and i was told my uterus looks very good. And yet i feel so horrible. How can i know for sure if u have adhesions? Is there a ‘particular’ kind of pain felt? Wouldn’t cat scan reveal something? My Dr and a physical therapist i spoke to today both seem to think so… Lastly, i followed up with a GI Dr and a colonoscopy was performed and thankfully all is okay. I pray and pray some more daily some form of relief will come tomorrow from this terrible abdo pain and sometime nausea i feel. I just want answers! And pray for healing for all of us who suffer with daily chronic debilitating pain.

  • Linda // Jun 23, 2015 at 6:26 pm

    40 years of pain from surgeries…2 gastric, appendectomy, tubal ligation, hemorrhoids, gall bladder, tonsils, adenoids, hysterectomy, parathyroid, 2 foot surgeries. PAIN in abdomen is almost constant. Now there is flank pain on both sides almost constantly. Gastroparesis. Poop about every 10-14 days and it is liquid & painful. Sometimes uncontrollable. The surgeon who did gall bladder laproscopically last year told me gall bladder was “plastered in place by adhesions” and it was very difficult to remove. Also said he would be concerned about my ability to poop. So, was pain free for 2 weeks and it slowly came back. Return to doc. His solution: Lose weight and poop more. The biggest concern for me is I have abdominal aortic aneurysm and worry about adhesions making this worse. Screened for AAA 2 x year via ultrasound, but ultrasound doesn’t show adhesions. All posts here seem to be from people suffering from very similar symptoms and unable to get relief. I give up! When something bursts, maybe I’ll be believed.

  • Betty // Dec 27, 2015 at 4:19 pm

    I have been in pain for over three years and I have been going to pain management and I think this doctor knows how bad my abdominal pain really is. Been going through this for over three years and I have been in pain every day but at night it eases off so I Can get some sleep and the next day we start all over again. I have cried enough to have my own swimming pool. It’s gotten so bad now that I wish they would euthanize me so I would be at peace. I can’t talk or listen to people’s words at time because it has gotten that bad. My life is my bed. There has to be someone out there who can help me. I don’t know how much more I can handle.

  • Helen Linnett // Jan 11, 2016 at 2:01 pm

    Ive just been today for a colonoscopy which was a disaster as the surgeon had to stop after only minute’s and said it was due to adhesions from former sugery
    I now have to wait for a CT scan…..still a worrying time for me

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