Comments on: Wisdom for Coping with Pain: An Interview with “Jeisea” http://www.howtocopewithpain.org/blog/39/an-interview-with-jeisea-wisdom-for-coping-with-pain/ Mon, 15 Mar 2010 14:24:47 +0000 http://wordpress.org/?v=2.9.2 hourly 1 By: Rachel http://www.howtocopewithpain.org/blog/39/an-interview-with-jeisea-wisdom-for-coping-with-pain/comment-page-1/#comment-17313 Rachel Fri, 23 Oct 2009 19:23:26 +0000 http://www.howtocopewithpain.org/blog/39/an-interview-with-jeisea-wisdom-for-coping-with-pain/#comment-17313 I have begun integrating Mirror therapy into the other methods I use w/ RSD/ CRPS. The methods I've developed for dealing with this terrible pain issue have arisen from needing to save myself from RSD in my leg. Also, my studies in traumatic stress and PTSD, have also helped me develop special tools for pain relief. I am currently building a website to provide teaching and self- help or partner assisted help for RSD. If anyone wishes to email me about what they need help with, I will respond and provide support tools. Rachel I have begun integrating Mirror therapy into the other methods I use w/ RSD/ CRPS. The methods I’ve developed for dealing with this terrible pain issue have arisen from needing to save myself from RSD in my leg. Also, my studies in traumatic stress and PTSD, have also helped me develop special tools for pain relief. I am currently building a website to provide teaching and self- help or partner assisted help for RSD. If anyone wishes to email me about what they need help with, I will respond and provide support tools. Rachel

]]> By: How to Cope with Pain http://www.howtocopewithpain.org/blog/39/an-interview-with-jeisea-wisdom-for-coping-with-pain/comment-page-1/#comment-17193 How to Cope with Pain Sun, 27 Sep 2009 12:45:20 +0000 http://www.howtocopewithpain.org/blog/39/an-interview-with-jeisea-wisdom-for-coping-with-pain/#comment-17193 Leticia, glad you're getting treatment early. While there are no guarantees with CRPS, that may help prevent spread. Also, having comprehensive treatment, which can include PT, guided imagery, antioxident diet, and perhaps mirror therapy, (in addition to medication), you have your best chance to recover. Let us know how it goes! Leticia, glad you’re getting treatment early. While there are no guarantees with CRPS, that may help prevent spread. Also, having comprehensive treatment, which can include PT, guided imagery, antioxident diet, and perhaps mirror therapy, (in addition to medication), you have your best chance to recover.

Let us know how it goes!

]]> By: Leticia http://www.howtocopewithpain.org/blog/39/an-interview-with-jeisea-wisdom-for-coping-with-pain/comment-page-1/#comment-17192 Leticia Sun, 27 Sep 2009 07:49:06 +0000 http://www.howtocopewithpain.org/blog/39/an-interview-with-jeisea-wisdom-for-coping-with-pain/#comment-17192 I have had CRPS since 2008 . Thank you for sharing information on CRPS. I am in the early stages of CRPS and taking Lyrica, Cymbalta. Since I have had early treatment will the CRPS continue to spread? Leticia I have had CRPS since 2008 . Thank you for sharing information on CRPS. I am in the early stages of CRPS and taking Lyrica, Cymbalta. Since I have had early treatment will the CRPS continue to spread?

Leticia

]]> By: Jay M. http://www.howtocopewithpain.org/blog/39/an-interview-with-jeisea-wisdom-for-coping-with-pain/comment-page-1/#comment-17098 Jay M. Sun, 30 Aug 2009 21:58:55 +0000 http://www.howtocopewithpain.org/blog/39/an-interview-with-jeisea-wisdom-for-coping-with-pain/#comment-17098 Nice write up...usually I never reply to these thing but this time I will. Thanks for the great info. Nice write up…usually I never reply to these thing but this time I will. Thanks for the great info.

]]> By: Barbara http://www.howtocopewithpain.org/blog/39/an-interview-with-jeisea-wisdom-for-coping-with-pain/comment-page-1/#comment-16579 Barbara Wed, 27 May 2009 11:41:55 +0000 http://www.howtocopewithpain.org/blog/39/an-interview-with-jeisea-wisdom-for-coping-with-pain/#comment-16579 I am amazed at how much information about RSD, pain, chronic illness and treatments is available on the web. I cannot read,actually I do not have the time to read even a fraction of it I have had RSD since1987 and the Internet since 1992, yes I was an early convert. I ran a website called RSD On Line. It was one of the first,if not the first on line. Now I can't even keep up with reading little of what is there I live a very full life. I do push myself too hard so I pay for it. I no longer allow RSD to control me. I am currently setting up my third photogrphy show I would love to start a site where I could share the adatptations that I have developed to help me live a full life with RSD and in a power wheelchair with almost no use of my right hand, legs and limited he'd movement....but right now I am too busy Barbara I am amazed at how much information about RSD, pain, chronic illness and treatments is available on the web. I cannot read,actually I do not have the time to read even a fraction of it

I have had RSD since1987 and the Internet since 1992, yes I was an early convert. I ran a website called RSD On Line. It was one of the first,if not the first on line. Now I can’t even keep up with reading little of what is there

I live a very full life. I do push myself too hard so I pay for it. I no longer allow RSD to control me. I am currently setting up my third photogrphy show
I would love to start a site where I could share the adatptations that I have developed to help me live a full life with RSD and in a power wheelchair with almost no use of my right hand, legs and limited he’d movement….but right now I am too busy

Barbara

]]> By: jeisea http://www.howtocopewithpain.org/blog/39/an-interview-with-jeisea-wisdom-for-coping-with-pain/comment-page-1/#comment-15777 jeisea Mon, 02 Feb 2009 05:24:32 +0000 http://www.howtocopewithpain.org/blog/39/an-interview-with-jeisea-wisdom-for-coping-with-pain/#comment-15777 Ang I just noticed this so hope you signed up for HTCwP emails of posts to see this reply. As you live in the UK there is an excellent website http://www.mirrorboxtherapy.com/ This site is run by DR Ilan Lieberman. At the top right of the site if you click on "contact" you can send a message to Dr Lieberman. He's involved in research into CRPS/RSD. Napp Pharmacuiticals donated mirror boxes to pain clinics throughout the UK. There's a lot of research going on in your country. If you google "Candy McCabe and RSD" you'll come up with some of what is going on. HTCwP has posted about DR Lorimer MOseley who is currently doing wonderful research in Oxford I believe. If you look on my blog at links on the left as you scroll down, you'll see links to UK information and research. Tony Tobin of UK RSD World News Yahoo group is a great help so I encourage you to join the group and contact Tony. His group isn't a forum but Tony posts latest articles and helps members where he can. HTCwP interviewed Tony on this website. If you go to "archives" and click on the tag "interviews" you can read what he said.http://health.groups.yahoo.com/group/RSD-WorldNews/ I also encourage you to take the time to have a good look at posts on this website in particular recent posts. jeisea Ang I just noticed this so hope you signed up for HTCwP emails of posts to see this reply. As you live in the UK there is an excellent website http://www.mirrorboxtherapy.com/

This site is run by DR Ilan Lieberman. At the top right of the site if you click on “contact” you can send a message to Dr Lieberman. He’s involved in research into CRPS/RSD. Napp Pharmacuiticals donated mirror boxes to pain clinics throughout the UK. There’s a lot of research going on in your country. If you google “Candy McCabe and RSD” you’ll come up with some of what is going on. HTCwP has posted about DR Lorimer MOseley who is currently doing wonderful research in Oxford I believe. If you look on my blog at links on the left as you scroll down, you’ll see links to UK information and research.

Tony Tobin of UK RSD World News Yahoo group is a great help so I encourage you to join the group and contact Tony. His group isn’t a forum but Tony posts latest articles and helps members where he can. HTCwP interviewed Tony on this website. If you go to “archives” and click on the tag “interviews” you can read what he said.http://health.groups.yahoo.com/group/RSD-WorldNews/

I also encourage you to take the time to have a good look at posts on this website in particular recent posts.

jeisea

]]> By: How to Cope with Pain http://www.howtocopewithpain.org/blog/39/an-interview-with-jeisea-wisdom-for-coping-with-pain/comment-page-1/#comment-15639 How to Cope with Pain Wed, 14 Jan 2009 16:50:24 +0000 http://www.howtocopewithpain.org/blog/39/an-interview-with-jeisea-wisdom-for-coping-with-pain/#comment-15639 Ang, what I'd recommend is finding healthcare providers who have expertise in CRPS. For example, PT's who are used to working with patients with CRPS can work with you to desensitize painful areas. Regarding work, if at all possible, it's good to return to work if you're able to. It's usually not a matter of 'yes' or 'no,' but <em>how</em> to return. In other words, how can you function <em>despite</em> having pain, and what are ways to work so you don't exacerbate your condition. Please check <a href="http://www.rsds.org" rel="nofollow">RSDS.org</a>, the RSDSA website. As well, <a href="http://www.cicoach.com" rel="nofollow">CI Coach</a> is a great website for work-related questions when you have a chronic illness. Please look around this site, too, for help! Good luck! Ang, what I’d recommend is finding healthcare providers who have expertise in CRPS. For example, PT’s who are used to working with patients with CRPS can work with you to desensitize painful areas.

Regarding work, if at all possible, it’s good to return to work if you’re able to. It’s usually not a matter of ‘yes’ or ‘no,’ but how to return. In other words, how can you function despite having pain, and what are ways to work so you don’t exacerbate your condition.

Please check RSDS.org, the RSDSA website. As well, CI Coach is a great website for work-related questions when you have a chronic illness. Please look around this site, too, for help! Good luck!

]]> By: Ang http://www.howtocopewithpain.org/blog/39/an-interview-with-jeisea-wisdom-for-coping-with-pain/comment-page-1/#comment-15635 Ang Wed, 14 Jan 2009 14:26:04 +0000 http://www.howtocopewithpain.org/blog/39/an-interview-with-jeisea-wisdom-for-coping-with-pain/#comment-15635 I had corrective foot surgery, April 08, got an infection which my consultant dug out with a scalpel without any freezing or pain meds. From that day on, I have had boiling, hot, stabbing pain almost as if someone is stabbing my foot (underneath) with a sharp knife, or walking on glass. My consultant didn't notice I had crps, even though I informed them of my excruciating pain, black hair growth on my foot, and colour changes as well as temprature change. He signed me over to physio with 1 stiff metacarsal. Physio took 5 minutes of questions, then asked if he could examine my foot. I cried and as the tears rolled, he asked what's the matter?? It's the first time anyone has asked my permission to touch my painful foot. Usually Dr's and nurses just grabbed and examined. Chris told me at that point I had crps at a stage 3, and he couldn't help until I could desensitise my foot, as even the slightest touch made my whole body sweat up and my foot would go black instantly. That was 5 months ago. Since then, it has been an uphill struggle as not many Dr's or physio's know much about crps. Much of my info comes from the net or forums. I'm really struggling to get on top of this condition as I want to return to work this week, but none of my medical team can give me a straight answer as to whether I should or should'nt return to work. I'm a foaling assistant on a thoroughbred stud in England and I love what I do. What do you think?? I had corrective foot surgery, April 08, got an infection which my consultant dug out with a scalpel without any freezing or pain meds. From that day on, I have had boiling, hot, stabbing pain almost as if someone is stabbing my foot (underneath) with a sharp knife, or walking on glass.

My consultant didn’t notice I had crps, even though I informed them of my excruciating pain, black hair growth on my foot, and colour changes as well as temprature change. He signed me over to physio with 1 stiff metacarsal. Physio took 5 minutes of questions, then asked if he could examine my foot. I cried and as the tears rolled, he asked what’s the matter??

It’s the first time anyone has asked my permission to touch my painful foot. Usually Dr’s and nurses just grabbed and examined. Chris told me at that point I had crps at a stage 3, and he couldn’t help until I could desensitise my foot, as even the slightest touch made my whole body sweat up and my foot would go black instantly.

That was 5 months ago. Since then, it has been an uphill struggle as not many Dr’s or physio’s know much about crps. Much of my info comes from the net or forums. I’m really struggling to get on top of this condition as I want to return to work this week, but none of my medical team can give me a straight answer as to whether I should or should’nt return to work. I’m a foaling assistant on a thoroughbred stud in England and I love what I do. What do you think??

]]> By: jeisea http://www.howtocopewithpain.org/blog/39/an-interview-with-jeisea-wisdom-for-coping-with-pain/comment-page-1/#comment-8423 jeisea Sun, 26 Oct 2008 04:36:54 +0000 http://www.howtocopewithpain.org/blog/39/an-interview-with-jeisea-wisdom-for-coping-with-pain/#comment-8423 Hi Jeri I'm so glad you've taken the trouble to look through this wonderful site "How to Cope with Pain". It's run by a chronic pain medical specialist. The doctor in charge has interviewed me for this website. You may have clicked on a link to this from my blog "CRPS/RSD A Better Life" and found my interview. Thanks again How to Cope with Pain for taking the wonderful work you do and the support you give to so many people. jeisea Hi Jeri
I’m so glad you’ve taken the trouble to look through this wonderful site “How to Cope with Pain”. It’s run by a chronic pain medical specialist. The doctor in charge has interviewed me for this website. You may have clicked on a link to this from my blog “CRPS/RSD A Better Life” and found my interview.

Thanks again How to Cope with Pain for taking the wonderful work you do and the support you give to so many people.
jeisea

]]> By: How to Cope with Pain http://www.howtocopewithpain.org/blog/39/an-interview-with-jeisea-wisdom-for-coping-with-pain/comment-page-1/#comment-6491 How to Cope with Pain Sat, 30 Aug 2008 22:28:39 +0000 http://www.howtocopewithpain.org/blog/39/an-interview-with-jeisea-wisdom-for-coping-with-pain/#comment-6491 Hi Jeri, I'll contact Jeisea for responses to your questions. You're also welcome to check out her website and inquire there. ~ HtCwP Hi Jeri,
I’ll contact Jeisea for responses to your questions. You’re also welcome to check out her website and inquire there.
~ HtCwP

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