Comments on: 10 Goals When You Can’t Be Cured http://www.howtocopewithpain.org/blog/308/coping-with-no-cure/ Fri, 30 Jul 2010 08:18:00 +0000 hourly 1 http://wordpress.org/?v=3.0.1 By: VICKIE http://www.howtocopewithpain.org/blog/308/coping-with-no-cure/comment-page-1/#comment-15989 VICKIE Wed, 18 Feb 2009 15:23:04 +0000 http://www.howtocopewithpain.org/blog/?p=308#comment-15989 I THINK THIS WAS A GREAT POST. NO, I HAVE NOT ACCEPTED WHAT HAS HAPPENED TO ME YET, I DON'T WANT TO. I JUST WANT TO GO BACK IN TIME AND BE (ME) AGAIN..BUT I KNOW THAT WILL NEVER HAPPEN...I FEEL POWERLESS OVER THIS ILLNESS OF R.S.D..AND IT IS CRAWLING..I DON'T EVEN WANT PEOPLE TO SEE ME THIS WAY..I WAS ONCE HAPPY, A GO GETTER, AND NOW AS SOON AS I AWAKE, OH MY GOD, HAVE TO TAKE A PAIN PILL. THEN SOMETHING FOR ANXIETY. BUT, I KNOW, THERES NO TURNING BACK. IT HAS HAPPENED, AND THERE IS NOTHING I CAN DO ABOUT IT. PANHEADVIC I THINK THIS WAS A GREAT POST. NO, I HAVE NOT ACCEPTED WHAT HAS HAPPENED TO ME YET, I DON’T WANT TO. I JUST WANT TO GO BACK IN TIME AND BE (ME) AGAIN..BUT I KNOW THAT WILL NEVER HAPPEN…I FEEL POWERLESS OVER THIS ILLNESS OF R.S.D..AND IT IS CRAWLING..I DON’T EVEN WANT PEOPLE TO SEE ME THIS WAY..I WAS ONCE HAPPY, A GO GETTER, AND NOW AS SOON AS I AWAKE, OH MY GOD, HAVE TO TAKE A PAIN PILL. THEN SOMETHING FOR ANXIETY. BUT, I KNOW, THERES NO TURNING BACK. IT HAS HAPPENED, AND THERE IS NOTHING I CAN DO ABOUT IT. PANHEADVIC

]]> By: Terri http://www.howtocopewithpain.org/blog/308/coping-with-no-cure/comment-page-1/#comment-8640 Terri Sun, 23 Nov 2008 05:34:25 +0000 http://www.howtocopewithpain.org/blog/?p=308#comment-8640 I think that is a wonderful and thoughtful list. I live with chronic daily headache (and have for almost 11 years). I feel like I have lost some of the best years of my life. But I also think I have learned more lessons about humility and compassion and grace and humanity than I would have otherwise. It is a battle to stay positive often, but this has become my life and that acceptance, of the illness, of myself, of others, of the "system" has finally started to come. Great post and wonderful thoughts. I will print it out and look at it often. Thank you! Terri I think that is a wonderful and thoughtful list. I live with chronic daily headache (and have for almost 11 years). I feel like I have lost some of the best years of my life. But I also think I have learned more lessons about humility and compassion and grace and humanity than I would have otherwise. It is a battle to stay positive often, but this has become my life and that acceptance, of the illness, of myself, of others, of the “system” has finally started to come.

Great post and wonderful thoughts. I will print it out and look at it often.

Thank you! Terri

]]> By: How to Cope with Pain http://www.howtocopewithpain.org/blog/308/coping-with-no-cure/comment-page-1/#comment-8621 How to Cope with Pain Sat, 22 Nov 2008 00:03:49 +0000 http://www.howtocopewithpain.org/blog/?p=308#comment-8621 Elizabeth, it <i>is</i> hard when something that is a big part of your life isn't understood. I think the best we can do is to try to let others know our situation, but understand when it's hard for them to "get it." Maureen, it sounds like you <i>have come</i> to a point of acceptance - not an easy task. Perhaps a way to explain it might be that acceptance brings some sense of peace, while depression would be discouraged and disheartened Deborah, glad you found <i>How to Cope with Pain</i>. Hope you'll continue to contribute. Elizabeth, it is hard when something that is a big part of your life isn’t understood. I think the best we can do is to try to let others know our situation, but understand when it’s hard for them to “get it.”

Maureen, it sounds like you have come to a point of acceptance – not an easy task. Perhaps a way to explain it might be that acceptance brings some sense of peace, while depression would be discouraged and disheartened

Deborah, glad you found How to Cope with Pain. Hope you’ll continue to contribute.

]]> By: Deborah http://www.howtocopewithpain.org/blog/308/coping-with-no-cure/comment-page-1/#comment-8619 Deborah Fri, 21 Nov 2008 20:22:27 +0000 http://www.howtocopewithpain.org/blog/?p=308#comment-8619 Maureen, I, also, related to the 10 changes that occur when someone finally comes to accept a diagnosis of chronic pain. My spiritual practice, this past year, is helping me put my chronic pain syndrome from my mastectomy in a totally fresh perspective. It is neither resignation, nor is it a negative "giving up." Rather, it is an attitude of striving to put the pain in a larger and broader context in which I view it as part of my life-path, as part of the way I can reach out to others. Each day is a challenge of perspective, a chalenge of view, but with an accepting point of view comes a peace of mind that often leads to a reduction in pain. Pain, I've discovered, does not have to lead to suffering. I just discovered this website today and am grateful for it! Thanks for your post, Maureen. Maureen,

I, also, related to the 10 changes that occur when someone finally comes to accept a diagnosis of chronic pain. My spiritual practice, this past year, is helping me put my chronic pain syndrome from my mastectomy in a totally fresh perspective. It is neither resignation, nor is it a negative “giving up.” Rather, it is an attitude of striving to put the pain in a larger and broader context in which I view it as part of my life-path, as part of the way I can reach out to others. Each day is a challenge of perspective, a chalenge of view, but with an accepting point of view comes a peace of mind that often leads to a reduction in pain. Pain, I’ve discovered, does not have to lead to suffering.

I just discovered this website today and am grateful for it! Thanks for your post, Maureen.

]]> By: Maureen http://www.howtocopewithpain.org/blog/308/coping-with-no-cure/comment-page-1/#comment-8616 Maureen Fri, 21 Nov 2008 18:18:56 +0000 http://www.howtocopewithpain.org/blog/?p=308#comment-8616 I liked your revisions for those with chronic illness. I am wondering if anyone else has the same experience I have had with doctors as it relates to some of these. . . I hope maybe someone will comment back - I have come to accept my life as it is now, not in a negative "I'll never be the same person again" way, but in knowing I need to do things differently than I used to. I also have found peace through my religion, and that has given me a chance to reflect on the meaning of my life. When I share any of that with doctor's, they seem to take it as a negative, or read acceptance as depression. I don't feel depressed, I know that things are different and instead of banging my head against the wall wishing they hadn't changed, I've come to accept the changes and make the best of what I CAN do. Has anyone else experienced this? Does anyone have any advice on how to respond to people to act this way? Thanks! I liked your revisions for those with chronic illness. I am wondering if anyone else has the same experience I have had with doctors as it relates to some of these. . . I hope maybe someone will comment back – I have come to accept my life as it is now, not in a negative “I’ll never be the same person again” way, but in knowing I need to do things differently than I used to. I also have found peace through my religion, and that has given me a chance to reflect on the meaning of my life. When I share any of that with doctor’s, they seem to take it as a negative, or read acceptance as depression. I don’t feel depressed, I know that things are different and instead of banging my head against the wall wishing they hadn’t changed, I’ve come to accept the changes and make the best of what I CAN do.

Has anyone else experienced this? Does anyone have any advice on how to respond to people to act this way?

Thanks!

]]> By: Elizabeth McClung http://www.howtocopewithpain.org/blog/308/coping-with-no-cure/comment-page-1/#comment-8610 Elizabeth McClung Fri, 21 Nov 2008 11:05:46 +0000 http://www.howtocopewithpain.org/blog/?p=308#comment-8610 Thank you for posting both lists, so often people with terminal illness which aren't cancer are sort of left to figure things out themselves. A form of dignified treatment I would put as a high value along with a least invasive treatment. However, for both dying and suffering alone. I don't know how to connect with the living anymore, or even with those in chronic pain. What do you say when someone with chronic pain tells you they would rather shoot themselves than be you ("Well, you are literally jumping the gun!") - it tells you how alone you really are. And for those who don't suffer chronic pain, it is very difficult to understand. Thank you for posting both lists, so often people with terminal illness which aren’t cancer are sort of left to figure things out themselves. A form of dignified treatment I would put as a high value along with a least invasive treatment.

However, for both dying and suffering alone. I don’t know how to connect with the living anymore, or even with those in chronic pain. What do you say when someone with chronic pain tells you they would rather shoot themselves than be you (“Well, you are literally jumping the gun!”) – it tells you how alone you really are. And for those who don’t suffer chronic pain, it is very difficult to understand.

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