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	<title>Comments on: Being The Conductor Of Your Pain Care Orchestra</title>
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		<title>By: Thomas</title>
		<link>http://www.howtocopewithpain.org/blog/1507/coordinating-your-own-medical-care/comment-page-1/#comment-17507</link>
		<dc:creator>Thomas</dc:creator>
		<pubDate>Tue, 24 Nov 2009 04:57:30 +0000</pubDate>
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		<description>It&#039;s a nice post. After reading your article I don&#039;t want to have a chronic pain in my life. I will be really hard to me to handle all this things. Last few years back I had a Back pain for around 2 week. It was horrible, tears was coming from my eyes because of the pain. And yes, the word patients may not be medically trained, but they are expert in their disease.  I am totally agree with that.</description>
		<content:encoded><![CDATA[<p>It&#8217;s a nice post. After reading your article I don&#8217;t want to have a chronic pain in my life. I will be really hard to me to handle all this things. Last few years back I had a Back pain for around 2 week. It was horrible, tears was coming from my eyes because of the pain. And yes, the word patients may not be medically trained, but they are expert in their disease.  I am totally agree with that.</p>
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		<title>By: Lana</title>
		<link>http://www.howtocopewithpain.org/blog/1507/coordinating-your-own-medical-care/comment-page-1/#comment-17482</link>
		<dc:creator>Lana</dc:creator>
		<pubDate>Fri, 20 Nov 2009 21:17:58 +0000</pubDate>
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		<description>That&#039;s an amazing post. I wish it was easier to find specialists who have such excellent open minds about treating chronic pain.</description>
		<content:encoded><![CDATA[<p>That&#8217;s an amazing post. I wish it was easier to find specialists who have such excellent open minds about treating chronic pain.</p>
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		<title>By: How to Cope with Pain</title>
		<link>http://www.howtocopewithpain.org/blog/1507/coordinating-your-own-medical-care/comment-page-1/#comment-17471</link>
		<dc:creator>How to Cope with Pain</dc:creator>
		<pubDate>Wed, 18 Nov 2009 15:19:38 +0000</pubDate>
		<guid isPermaLink="false">http://www.howtocopewithpain.org/blog/?p=1507#comment-17471</guid>
		<description>Marjorie, thanks for the excellent suggestions.</description>
		<content:encoded><![CDATA[<p>Marjorie, thanks for the excellent suggestions.</p>
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		<title>By: marjorie</title>
		<link>http://www.howtocopewithpain.org/blog/1507/coordinating-your-own-medical-care/comment-page-1/#comment-17468</link>
		<dc:creator>marjorie</dc:creator>
		<pubDate>Wed, 18 Nov 2009 14:30:11 +0000</pubDate>
		<guid isPermaLink="false">http://www.howtocopewithpain.org/blog/?p=1507#comment-17468</guid>
		<description>This article truly resonates with me.  I have had chronic pain for over 20 years in my face due to degenerative joint disease in my jaw joint,  ultimately resulting in a full jaw joint replacement.  The multiple surgeries and procedures are probably what led to my RSD/CRPS in my face, right shoulder and arm.

I&#039;d love to add to this very good post, that I have found that it is important for me to recognize my physicians are humans - they have bad days, distractions, and preoccupations just as I do.  Sometimes as a patient I have to figure out how to break into their worlds.

For instance, one of my docs seems to respond better to my problem of the day, if I approach him summarizing where I&#039;ve been and what&#039;s worked.  I believe this is because with his help, I have had gradual improvements over the last 3 years.  Keeping a &quot;big picture view&quot; aids me in self evaluations and puts me more in this doctor&#039;s mental landscape.  If I meet him there, he then meets me in my current need. 

I have also found that preparing for interactions with my physicians (I work with a neurologist, primary care provider, a surgeon, a psychiatrist) is time well spent.  

This prep can look like a print out of current meds and and notes about changes.  Or a list of questions or concerns - one that I give the doc, and one that I write their responses in for myself.  It forces me to be concise and helps them know what I need and where the conversation is going.

Another form of prep may be a chart (think spread sheet like) of as needed (prn) medications, like muscle relaxants, analgesics or opiods.  I record which medications and when I&#039;ve taken them - for several weeks.  This  provides the physician raw data, not just my anecdotal memory.  With that data, docs have recognized patterns, external influences on my pain or even that another medication would work better.  

Thanks for the good insights shared!</description>
		<content:encoded><![CDATA[<p>This article truly resonates with me.  I have had chronic pain for over 20 years in my face due to degenerative joint disease in my jaw joint,  ultimately resulting in a full jaw joint replacement.  The multiple surgeries and procedures are probably what led to my RSD/CRPS in my face, right shoulder and arm.</p>
<p>I&#8217;d love to add to this very good post, that I have found that it is important for me to recognize my physicians are humans &#8211; they have bad days, distractions, and preoccupations just as I do.  Sometimes as a patient I have to figure out how to break into their worlds.</p>
<p>For instance, one of my docs seems to respond better to my problem of the day, if I approach him summarizing where I&#8217;ve been and what&#8217;s worked.  I believe this is because with his help, I have had gradual improvements over the last 3 years.  Keeping a &#8220;big picture view&#8221; aids me in self evaluations and puts me more in this doctor&#8217;s mental landscape.  If I meet him there, he then meets me in my current need. </p>
<p>I have also found that preparing for interactions with my physicians (I work with a neurologist, primary care provider, a surgeon, a psychiatrist) is time well spent.  </p>
<p>This prep can look like a print out of current meds and and notes about changes.  Or a list of questions or concerns &#8211; one that I give the doc, and one that I write their responses in for myself.  It forces me to be concise and helps them know what I need and where the conversation is going.</p>
<p>Another form of prep may be a chart (think spread sheet like) of as needed (prn) medications, like muscle relaxants, analgesics or opiods.  I record which medications and when I&#8217;ve taken them &#8211; for several weeks.  This  provides the physician raw data, not just my anecdotal memory.  With that data, docs have recognized patterns, external influences on my pain or even that another medication would work better.  </p>
<p>Thanks for the good insights shared!</p>
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		<title>By: Loretta</title>
		<link>http://www.howtocopewithpain.org/blog/1507/coordinating-your-own-medical-care/comment-page-1/#comment-17467</link>
		<dc:creator>Loretta</dc:creator>
		<pubDate>Wed, 18 Nov 2009 14:17:41 +0000</pubDate>
		<guid isPermaLink="false">http://www.howtocopewithpain.org/blog/?p=1507#comment-17467</guid>
		<description>This is so right.  Only you know your body.</description>
		<content:encoded><![CDATA[<p>This is so right.  Only you know your body.</p>
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